Have you ever heard of Adenoid cystic carcinoma (ACC)? What exactly is it, most ask?
Please watch this recently aired short clip from a Boston news station about Marnie and Jeff Kaufman, Co-Founders of the Adenoid Cystic Carcinoma Research Foundation (ACCRF). It will only take a few minutes and it shares her poignant story about her fight with ACC and her determination to find better treatments and cures for this disease.
ACC is a rare cancer, typically originating in the head and neck region. This malignancy has a slow – and sometimes relentless – progression with a tendency to grow along nerves. Particularly high rates of recurrence and metastasis to the lungs lead to a poor prognosis beyond ten years.
The ACCRF supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.
Why is this important?
This is the disease that I am currently battling and the reason why Wannabe Riders exists. Although I am doing my small part in life to find a cure for cancer (vis a vis LIVESTRONG) via fundraising efforts, my main goal is to find ways to raise money for the ACCRF.
I have since met (and currently) and now work with Marnie (above) to bring more awareness to this disease. At the very least, if I can make Wannabe Riders more aware of this rare disease, then I have done my job. Thank you for spreading the word.