ACC Update by American Cancer Society

Adenoid cystic carcinoma of the head and neck: Incidence and survival trends based on 1973-2007 Surveillance, Epidemiology, and End Results data.

1. Cancer. 2012 Jan 31. doi: 10.1002/cncr.27408. [Epub ahead of print]

Ellington CL, Goodman M, Kono SA, Grist W, Wadsworth T, Chen AY, Owonikoko T, Ramalingam S, Shin DM, Khuri FR, Beitler JJ, Saba NF. Rollins School of Public Health, Emory University, Atlanta, Georgia.

BACKGROUND: Adenoid cystic carcinoma (ACC) of the head and neck (ACCHN) is a rare tumor of minor salivary, parotid, and submandibular glands. The biologic behavior of the disease is poorly understood, and nonsurgical treatment strategies have yet to be standardized. The long-term prognosis continues to be guarded, with an estimated 10-year survival of <60%. Population-based studies examining ACC are scarce. The authors aimed to analyze incidence rates and survival outcomes for patients diagnosed with ACCHN using national population-based data. METHODS: Data were obtained from the US National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) program. Newly diagnosed ACCHN cases reported to SEER from 1973 through 2007 were categorized according to their sex, race, age, year of diagnosis, marital status, treatment interventions, primary tumor site, and disease stage. Incidence of ACCHN and postdiagnosis survival were examined over time and compared across different demographic and disease-related categories.

RESULTS: The authors identified 3026 patients with ACCHN. The mean age at diagnosis among those cases was 57.4 years (range, 11-99 years). Analyses of incidence data demonstrated a decline in ACCHN rates between 1973 and 2007, noted across all sexes and races with no detectable inflexion points. The overall 5-year, 10-year, and 15-year survival outcomes for ACCHN patients were 90.3%, 79.9%, and 69.2%, respectively. Females, patients with localized disease, and younger patients were found to have significantly better survival across all time periods (all comparison-specific log-rank P values <0.001). Multivariate analyses revealed better prognosis among women compared with men (hazard ratio [HR], 0.73; 95% confidence interval [CI], 0.65-0.82), among married compared with unmarried individuals (HR, 0.81; 95% CI, 0.71-0.91), with certain sites of origin and stage of disease (HR, 2.788; 95% CI, 2.36-3.29), and in those who had surgery of the primary tumor site (HR, 0.45; 95% CI, 0.37-0.54).

CONCLUSIONS: The overall incidence of ACC is declining. The noted differences in survival based on sex, marital status, site of origin, and treatment intervention require further investigation.

Cancer 2012. © 2012 American Cancer Society.

Copyright © 2012 American Cancer Society.

PMID: 22294420  [PubMed – as supplied by publisher]

Inaugural Wannabe Cancer Free of ACC 5K Run/Walk, it’s a Go!

Wannabe Cancer Free of ACC 5K & 1 Mile Fun Run/Walk, benefitting the Adenoid Cystic Carcinoma Research Foundation, will take place on Saturday, November 17, 2012.

Bookmark this site for updated information coming real soon!

Contact Gerald via email HERE if you have any questions, would like to volunteer or would like to be notified once registration is live.

Help us find a cure for this rare disease.

24 Hour Ride Begins

I'm riding for you Robert, Amber & John!

In a few hours, I will begin my first 24 hour cycling event, 24 Hours of Booty (24 HOB) here in Charlotte, NC. Who knows how many miles I will complete but I will do my very best. Besides… does it really matter? My plan is to ride, drink (non-alcoholic drinks), eat, sleep (a bit) and then repeat the cycle over and over again. It’s going to hurt, for sure, but I’ll have to suck it up!

If you are interested, you can follow as I tweet my experience (that’s right I am now on Twitter) at @wannabeglb.

But more importantly, I am riding the 24 Hours of Booty in honor of 14-year old Amber Cunningham who is currently battling non-Hodgkins Lymphoma, John Raucci who is battling Pancreatic Cancer and in memory of  a childhood friend, Robert McWhorter, who recently passed away (at age 35) from Colon cancer. This is for you guys; I hope to do you proud.

For what it’s worth, I have been asked to be one of the lead riders of 24 HOB; it’s an honor and a privilege that if you can believe it, makes me a bit emotional just thinking of it. To be in a position to do such a thing reminds me of how precious life really is. Very powerful stuff indeed.

Keep on fighting and LIVESTONG!

wannaberiders against cancer: I’m so proud of you for dedicating a part of your life to cancer awareness. Your positivity and steadfastness speaks volumes. Keep up the good work!



I’m a Celebrity, Get Me Out of Here!

I made the Charlotte Observer this past week as part of a story on sprint triathlons. Meanwhile, the story also appeared in print, front page of the Health & Family section.Yes, my last name is spelled wrong on a number of occasions but its the intent of the story that counts, right?

Anyhow, you can view the story in its entirety here. The story also ran online in the Raleigh News & Observer as well.

I am happy to provide signed copies of you so desire. Seriously? I was humbled by the experience.

Thank you to Joe and my local YMCA for coming up with the idea to write the story.

The author, Joe Miller, writes about fitness and the outdoors. For more on training for a sprint triathlon, as well as other fitness topics visit his blog at


Support the American Cancer Society

support the american cancer societyThis is kind of a shameless plug for the company I work for, Pear Tree Greetings, but I’m really proud of this initiative. We’ve partnered with the American Cancer Society to develop a line of 6 limited edition cards where all the proceeds go to support the American Cancer Society and its Hope Lodges. This is a time of year when connecting with friends, relatives, and donors seems to make the most impact, so why not buy some personalized cards and support a great cause all at the same time? Check it out.